Tuesday, September 16, 2014

Node to Joy

Oh, the joys of losing 21 Lymph Nodes!

As I mentioned, between both surgeries a total of 21 lymph nodes were removed from my right arm.  Initially it was 5.  However, two tested positive for cancer and since a HER2 + cancer is considered aggressive, it was recommended to remove a larger cross section.  Thankfully the remaining lymph nodes were positive free.  In theory that means, they got it all.

The risks associated with this type of surgery can be loss of mobility in the arm and Lymphedema.

Lymphedema is a swelling that occurs when fluids build up in the arm.  They cannot drain properly because there are fewer or no lymph nodes to process the fluid and keep it moving.

Again, I am extremely lucky because any side effects i have are minimal.  But I honestly expected to have returned to my old self by this time….I haven’t yet and it frustrates the hell out of me

I have a pretty good range of motion in my arm.  However, there are points when I feel a pull in my arm, now and then I get a tingling sensation and sometimes my jewelry feels tight on the right side.  Both arms look the same, yet there is a slight swelling in the upper arm and collar bone.  Now and then it looks like I have a little back boob on the right side.  Whaddya gonna do?

I was fitted for a compression sleeve which helps push fluid through the arm but I hate to wear it.  If you ask me, its an over glorified pair of tights that costs an average on 114$ and apparently the custom ones are in a crazy price range (but they have a range of colors including animal print.  Hello??? A zebra print sleeve to match my zebra print jeans)  The nurse demonstrated how to pull it on and adjust it.  I followed her instructions closely, using a rubber glove when putting it on to avoid catching to jewelry or rough cuticles.  Which likely looked very strange to CATSA when they scanned my carry on at the airport to find one lonely yellow rubber glove.

Where I struggle the most is during my workouts.  I used to work out at least 3-4 times per week, and for example lift anywhere between 12-15 pounds doing triceps extensions.  Now I use half the amount of weight and my arm still feels numb afterwards.

Last week I attended an information session on Lymphedema – I learned how to give myself lymphatic massages, about the different sleeves and other aids to use on your arm and how to take care of my arm; moving forward. 

Not being the type to “google” stuff, I was the eager student constantly raising my hand with questions.  At one point I commented that I felt foolish being the only one with questions. 
“that’s alright” said the physiotherapist, “You are asking questions that people already have in their mind”

“Can I play paintball?”  I bet no one in the audience was thinking about that one.

“Only if you can promise that you will get hit from the waist down.  Why don’t you make an appointment to see me after this class” 


That’s code for “You obviously are stupid or stubborn or both and I want to see you because you are voted most likely to injure yourself.”

Monday, August 18, 2014

Happy Anniversary

Tomorrow marks my one year anniversary of being diagnosed with cancer. For as long as I live, I will not forget the exact moment I heard the news....

On August 19, 2013 my doctor looked at me sympathetically and said:

 "The lump is indicative of cancer."

I can still hear her tone of voice.  Those words lingered in the air.

The previous Friday I had what I suspected would be a normal mammogram.  A lump was detected earlier in the summer and having been through this before, expected it to be no big deal.  I pushed off making a doctor's appointment and tests.  During the ultra sound, the radiologist came in and began to do a second set of images.  When he finished and as I was lying there topless, covered in boob jelly, he told me that I needed more images, an MRI and was referring me to a surgeon.

"Woah!  Woah woah"  I said "I have been through these tests before and no one has even said that. You are scaring me."

"This lump is abnormal and we need to move quickly." He replied.

Then I was stuck back in the waiting room surrounded by people, with what seemed like an eternity to have another mammogram.  I struggled to keep it together and the minute I got back into my car, bawled my eyes out.  Over the weekend, I was stressed but thought it was an error.  Everything was going to be fine...  They were just being cautious...  It was a benign tumour or something like that...  Everyone was creating a panic for nothing...

Then on the Monday I returned a call from my family Dr and was asked to come into her office.

Laura wouldn't let me go alone.

The second my Doctor told me the news, I broke down, sobbing; and as she hugged me, apologized profusely.

I tried to gain some sense of composure, threw on my over sized sunglasses (Thank God!) and walked back out to the waiting room.  Of course Laura was anxious to know what the results were but I pulled her out of the building before I told her.  And sobbed uncontrollably in the parking lot.

In retrospect I have no clue why my Doctor apologized - (although afterwards she reminded that when I first told her about the lump she had joked "Watch it be cancer")  Both she and my surgeon had both said that to touch the lump, you would not expect it to be cancerous.  It was very mobile which apparently is unusual for a cancerous growth.  But wanting to be safe than sorry she sent me for a mammogram.  A few years earlier I had found a small lump and wanted it checked.  My family doctor at the time didn't think it was anything serious but the lump changed size and I returned alarmed.  He still did not request a mammogram but I went to a walk in clinic and asked to be referred for a mammogram.  In the end it turned out to be nothing but I felt that he wasn't taking care of my needs and switched to me present day family doctor.   If I was still under his care last year, things may have turned out much differently for me and perhaps for the worst.  To the touch it didn't seem like a big deal but the image of the lump in the ultra sound was in the shape of star.  When a tumour has little legs coming out of it, it pretty much is a text book case of cancer.  I have my ultra sound images.  I know exactly what they are talking about.

I couldn't be alone for the following two weeks.  I tried my best to work during the day and then took turns spending evenings with my friends.   Lying in bed alone at nights; my mind constantly drifted to the worst case scenario and they were not healthy thoughts.

The day I met with the surgeon, she confirmed that the ultra sound results were pretty cut and dried.  It was likely cancerous but the jury was still out on the lymph nodes.  Initially she suspected surgery and radiation.

My surgeon looked me straight in the eye and said "Now if you listen to me and do exactly what I tell you, everything will be fine."

I walked away feeling the most confident than I had in weeks.  I started to become more calm and realized that I wasn't the first person to be diagnosed with cancer and I wouldn't be the last.  I wasn't going to let it get me.

Then the battery of tests began...MRI, more ultra sounds, biopsies, meet with the surgeon, blood tests, etc etc - all of these tests are standard procedure and with each test brought about the same result:  Cancer.  Eventually I said "Enough already.  We already know I have cancer.  Just take it out!"  Finally, the day after my birthday, my doctor called  to confirm the final test result: Cancer.

Over the past year, I have reflected on those few days, post diagnosis.  I have never in my entire life felt that vulnerable, scared and helpless and in the end, it was all for nothing.  I survived the past year and expect to stick around much longer.  The year has flown by and as I mentioned in my last entry, it was one of the most incredible learning experiences ever.

Fuck you cancer!  

You thought you would win but you will never win.  You showed me how strong I really was.   You were a catalyst that showered me with love and support from all of my family and friends.  You opened my eyes to all the wonderful things that I should be thankful for.  You introduced me to the most amazing set of vixens. You inspired me to want to achieve greater things in life.

You may have invaded my body and you may invade it again but you will never break my spirit!  







Wednesday, July 23, 2014

The Lessons I Have Learned From Cancer

A few weeks ago, a friend on Facebook challenged me to write three positive statements or expressions of gratitude for seven days.  I accepted the challenge because I believe that using social media to put in the universe a positive message/energy could only bring about good things.  Part of the challenge included asking two people each day to do the same.  The end result was every time I checked my Facebook news feed, it was filled with positive energy from people posting what they are grateful for that lasted for several days!  How awesome is that??

On the last day I expressed my gratitude for being dealt the cancer card.  That’s a pretty unusual statement to make and I feel I need to elaborate.

Let’s set the record straight: I do not wish cancer upon anyone.  The past year has not been easy.  There is not one day that goes by that I don’t think about it.  When I look in the mirror at my scars, radiation tattoos or my port, I am  reminded.  I still can’t lift heavy weights at the gym and am being be fitted for a compression sleeve today.  I have photos of my bald head, wigs, odd mementos and items lying around (like a box of medical supplies in the cupboard) to remind me.  I think about what my body has gone through and frequently wonder if it will ever come back. 

But over the past year, there are moments, I would not trade for anything.  I have learned so much about cancer, about the people in my life and most importantly, about myself.  

Below are the top ten things I have learned from having cancer: 

  • The importance of a healthy diet/ exercise

I always knew eating healthy was important.  I just chose to ignore it.  I was lucky – I could eat whatever I wanted and not gain weight.  My diet consisted of red meat, carbs, salt, sugar, fat and very little vegetables.

I decided that adjusting my diet to include more vegetables like broccoli, cabbage and kale; would help keep my body healthy and therefore help manage any side effects of treatments.  I learned the benefits of juicing (how else can I eat two whole heads of broccoli in one day?) and experimenting with ways to mask the taste of vegetables.  In the past few months, I believe I have consumed more vegetables than I ever have in my entire life.

Do I believe it will cure me from cancer?  Absolutely not – so to anyone out there who believes that eating lemon rind, or soursop fruit, or turmeric, or wheat grass will cure and prevent cancer from returning; I just don’t want to hear it and please don’t be insulted if I reject your belief; especially if you have never had cancer in the first place.  If pineapples cured cancer, they would cost more than 3.99 at Loblaws.  End of Story!

  • Everyone has an opinion.  Trust your own

People genuinely want to help and that is fantastic!  It makes the world a better place.  But I was quickly overwhelmed with advice and opinions of people.  Some thoughts included that I should not have worked during treatments, that I needed acupuncture, naturopath, physio, special mastectomy bras, XYZ vitamins, that I shouldn’t stay at the farm alone, that I should not work out… even my ability to drive was questioned.

The best opinion to follow is your own gut instinct.  You know yourself better than anybody

For example, there is no point in seeing a Nutritionist who believes in a vegan diet when I hate vegetables!  It makes more sense for me to speak with moms who sneak veggies into their kids’ foods successfully.

I learned to ask for help when I wanted or needed it.  That is a pretty big, gutsy move, especially for someone who is independent.  People are afraid to show vulnerability but it’s ok to ask for help from time to time.  I also learned how to be selfish and that NO is the biggest word in the English language.  I am grateful for everything that everyone has done but sometimes I wanted to be alone.  I didn’t mean I was depressed or sick.  I cannot go out every evening to dinner, I cannot have 3-4 people visiting me the day after chemo, and when I was flat out on the floor in pain from treatment; people checking in on me was the last thing I wanted.

I have learned that if I want to help a friend, going through a difficult time, the best way to check in on them, offer my services, maybe even suggesting how I can help (i.e pick up groceries, shovel a walk way in the winter.) Then, step away and let them ask me for help when they are ready.

  • Use your china and silverware

How often have we purchased or received a gift that we use specifically on special occasions, only to discover 5 years later, we never used it?  What is the point of having something if we do not enjoy it?

I recently watched my God daughter play in the dirt at home, wearing a cute, ruffled party dress and her ball cap.  At 4, she is totally unaware that she gets the concept.  She likes her dress and doesn’t need a special reason to wear it.  She will outgrow that dress in a year anyways.

So use your china when eating Kraft Dinner, wear your fine jewelry while grocery shopping, set out your white tables linens at your next dinner (Ok, I still struggle with that one), and drink that expensive bottle of wine on a random Tuesday evening to celebrate that you made it through another day.   If you don’t think you will never use something, get rid of it to either A- make more room for what you will use and enjoy and B- perhaps someone else may enjoy what you do not want.

You never know what could happen tomorrow and it would really suck if you never take advantage of the opportunity to enjoy what you have.

  • Meditation/reflection and solitude

Meditation is something that takes lots of practice.  When I started working from home, I practiced meditation.  I found an app to guide me through the process which helped and I became better at it, when I took time off work.   I would even set myself up outside to practice. I actually put a reminder in my calendar to mediate every day at 5 PM.

One of my favorite memories is sitting in the middle of a forest, oblivious to the cold, meditating while a dozen deer graze around me.  To sit that still is an incredible feat.

This exercise came in handy during radiation.  Sure I had to stay still for only 5 minutes but Murphy’s Law dictates that is the precise time when I had an itchy nose.  Using the techniques I learned over the previous months, I was able to zone out and ignore external forces.  I began to look forward to those 5 minutes every day.

My former art teacher, and fellow vixen recommended that I use my time at the farm to live like a monk…to reflect and meditate.  What a smart woman.  Having the time off gave me the opportunity to think about what I have accomplished in life, thus far and what I need to do moving forward, to accomplish further goals.

  • The importance of family and friends

During the last few months, I relied on family and friends for help and support.    In a post earlier this year, I wrote about my appreciation for everything everyone has done and the encourgaement is never ending!  Peter constantly reminds me how the past year has brought me closer to my family.  Yup, he is right. 

My family and community have given me an incredible amount of support and the trivial things we may have argued about in the past, are overlooked.  My friends are my second family and I can’t thank everyone enough for doing all that they have done.  I get very choked up thinking about how everyone rallied around me.  I hope that one day, I will have a chance to repay everyone individually for their kindness.

I learned of the limitations of some people.  There are people I can come to in a moment of crisis and others cannot handle any stress in their lives other than their own.  It doesn’t make them bad people.  I just accept who they are and what they can handle.   I can cry on some shoulders and others I can have a beer and talk about the weather.  I don’t have time to manage others' agendas, emotions and reactions at this point of my life.  Maybe someday I will, but not right now.

I also realize that there people who are negative, toxic and full of drama that I need to step away from.  I don’t hate them or are mad at them.  I may be disappointed in some but learning to let these people and the negativity they bring to the table, go allows me to focus on others who have made a more positive impact on my life. 

  • Spirituality plays a role

Not everyone believes in God and I am not the person to convince anyone he/she does exist. It’s a personal thing.  In my case, I was raised in a faith based home.  I go to church.  I used to teach Sunday School and now I am even a church councillor.  Although it makes me cringe when I hear my name announced during prayers, it is comforting to know my church community thinks of me.

It kind of surprised me that after being diagnosed with cancer I didn’t turn into a God loving bible thumper or become the exact opposite; reject God because I felt he abandoned me.  I have actually spent a lot of time pondering this…how come this situation has not solidified or crumbled my faith?

Then it dawned on me that that having a sense of Faith doesn’t mean you have to pray more, go to church more or become totally God fearing.  I have accepted and embraced my situation and tried to find its purpose in order to make a positive impact in my life and in others’ lives.  Rather than viewing cancer as a life sentence, I see it as doing community service.  How can I use it to make it a better world?  Discovering faith in myself and having a desire to make a positive impact has in fact, made my relationship with God stronger.

My greatest fear is being dead.  No one has ever told us what it feels like….I mean really dead and buried in the ground or cremated, not that "I saw a white light for 5 seconds on an operating table" crap.  If there is a soul; are we aware we are in a small box, covered with dirt?  Are we aware we are being burned to ashes?  Is there really a heaven and is it high up in the sky where we look down upon our loved ones? (because I am also afraid of heights.)  These questions have plagued me since I was a child.  My former Art Teacher, Carol (can you not tell that I love this woman to bits?) told me once that perhaps our souls are not inside our bodies but they are a larger entity and our bodies live inside our soul.  So when we die, it’s like losing a fingernail and there is so much of us leftover in the universe.  Doesn’t seem so bad when you think of it that way.

I trained myself to be less afraid.  I cannot predict the future.  I believe God has it all planned out for me and everything serves it purpose.  Cancer may return tomorrow or it may never.  I may die next week, next year or 40 years from now.  When it’s my turn, it will be my turn.  I can’t stop the inevitable or waste my time thinking about it.


  • Cancer doesn’t have to be scary

Or any illness, tragedy or stressful, life altering situation.  Prior to August 19, 2013; I knew nothing about cancer.  I thought it made people die.  I thought treatments were the same for every type of cancer and made everyone sick and weak.  I thought radiation and chemotherapy were the same thing.

So when my doctor told me that I have cancer, I did not take the news well.  I was scared shitless!  I thought I was going to die and for about two weeks, I couldn’t make it through one hour without breaking down.  I was scared to be alone because I would consistently imagine the worst possible scenario.

It wasn’t until my first consultation with my surgeon that I realized I could get through this.  She put my mind at ease that it was treatable and that I would return to normal when it was all completed.  After our consultation and  an evening fuelled with alcohol, followed by an incredible hangover the next day; my fear was replaced with determination.  My mottos became: “It’s gonna take more than a lump in my boob to get me down” and “Survive cancer like a rock star.”  I decided to turn the next year into an experience, document it and celebrate every milestone.  I was going to get through this; physically and emotionally

  • In difficult times, people find ways to cope and find an inner strength

To elaborate more on the above, people find their own way to deal with crap.  Some of the women I met on the tour, preferred experiencing their own personal tour privately.  I was the opposite.  One way isn’t better than the other.  It is finding what works for you.  I relied on my sense of humour and outgoing and open attitude to get through everything.  I turned chemo in a party, I embraced my scars and bald head.  I learned to make the best of the situation and view it as an experience

I did everything in my power to keep my usual routine.  Sure, I was frustrated that I couldn’t do some of things I like to do, like the winter beer festival, snowshoeing or skating for long periods of time or Christmas parties but I had to be smart about things.  On the flip side, I looked for bonuses…like the free swag you get from the Look Good, Feel Better program or the portraits from the photo shoots, I participated in.  Again, the c card is a shitty one to be dealt so take advantage of any perks.

  • Be careful what you wish for

For years I always said “I need to eat healthy,”  “I need to learn to slow down,”  "I should take better care of myself," “I need to learn to not sweat the small stuff” and never really did anything about it.  Guess what?  When you are going through cancer treatments, you learn how to do all the above.

While I was off work, I was reading about the fundamentals of Tibetan Buddhism and “Noble Truths.”  One of the teachings that really struck a chord with me was that sometimes bad instances should not be viewed as a sufferings but as opportunities for development.  An example was provided of someone surviving a heart attack to see it as a warning to make appropriate changes to his or her lifestyle.

That is exactly how I have viewed my diagnosis.  It’s a second chance at making better choices for myself.  I hope I do not waste that second chance

I am going to sound like a total nut job for a second but I feel like a different person.  I feel lighter, happier, my senses are heightened and have an overall feeling of satisfaction and gratitude.  The only example I can equate it to:  Ebenezer Scrooge waking up, after being visited by the ghost of Christmas yet to come, to find that he is still alive. He has a renewed sense of gratitude and states "I will honour Christmas in my heart, and try to keep it all the year.  I will live in the Past, Present and the Future.  The spirits of all three shall strive within me.  I will not shut out the lessons that they teach!"

Furthermore, Dickens writes:  "He went to the church, and walked about the streets, and watched the people hurrying to and fro, and patted the children on the head, and questioned beggars, and looked down into the kitchens of homes, and up to the windows, and found that everything could yield him pleasure.  He had never dreamed of any walk...could give him so much happiness"

Some days when I walk to work, I feel the same way

  • It’s your own choice to be the victim or the conqueror

Just before I returned to work, I came across a powerful quote by a man named Victor Frankl who wrote about his experiences living in a concentration camp in a book called “Man’s Search for Meaning.” His theory is how a prisoner imagines his future, affects his longevity.

"Everything can be taken away from a man but one thing: the last of the human freedoms - to choose one's attitude in any given set of circumstances; to choose one's own way."

Wow....I have yet to read his book and in absolutely in now way would I ever equate surviving cancer to survival in a concentration camp but Frankl walked away from a horrific situation and shared his experience to inspire and motivate others. If he has chosen not to be a victim, I have no reason to see myself as one.

Sometimes in life, we find ourselves in unpleasant situations.  Sometimes it is our own doing; other times it is at the hand of another or circumstances beyond anyone's control.  We have a choice.  We can lament and pin blame or we can learn, look for a solution and move forward.  In my opinion, the latter makes us better people.

I am not perfect and do not pretend to be.  I have made mistakes in my life and guess what?  I will likely make many more.  Some people will like me and others will think I am a complete asshole.  But I feel that I have learned some very valuable lessons over the past year.  I was lucky and after observing others at the hospital, know that I got off scot free.  I have been given another chance to appreciate what I have, look for ways to improve myself and to give back to society, hoping to make a positive impact no matter how small it may be.

And I finish with one more quote by Frankl:

The pessimist resembles a man who observes with fear and sadness that his wall calendar, from which he daily tears a sheet, grows thinner with each passing day. On the other hand, the person who attacks the problems of life actively is like a man who removes each successive leaf from his calendar and files it neatly and carefully away with its predecessors, after first having jotted down a few diary notes on the back. He can reflect with pride and joy on all the richness set down in these notes, on all the life he has already lived to the fullest. 


That is exactly how I want to live!!


Friday, July 4, 2014

Leave All Your Troubles On The Ground

Now that I have returned to work and trying to have an active, sociable summer; I am going to bet it will be hard to keep regular updates on the blog.  I know I am supposed to take it easy but at times I equate myself to a kicking horse at the rodeo, just as its being released from the pen….There is a burr under my saddle.

Last Sunday I had an incredible experience.  A gentleman by the name of Alan, has been following my blog.  The connection is that he is good friends with Ron (who refers to himself as my stalker) who has been Meta’s coach throughout the tour.  Alan is also a cancer survivor (or as Kris Carr calls them: cancer cowboy) and has a Cessna plane.  Towards the end of radiation, Alan extended an invite to take Meta and myself flying over Ladysmith and my farm.  Of course I jumped at the chance….what an awesome way to celebrate the end of radiation.

Albeit hot and muggy, it was a beautiful day with just a little bit of haze.  Alan did his safety check, showed us how to get in and out of the plane (the doors cannot handle too much stress.)  I rode shotgun and just as I was buckling myself in, turned to Meta and said “you know I don’t do ferris wheels.”  But I figured I would not have a fear of a small plane since I was well caged in.  Alan allowed me to act as the navigator.  Of course, I initially sent him on the wrong course but eventually we found our way and before we knew it, I was flying over where I grew up. 


Thanks Alan for an amazing day!


Alan and I - Preflight

Where I spent my time, meditating this winter

Meta and I back on the ground

Friday, June 20, 2014

Beware of Friday the 13th

Last week was Friday the 13th.  It was also supposed to be my last day of radiation.

On Tuesday, while en route to the hospital, I received a call from my technician to let me know my lucky machine # 7 was broken and my appointment was cancelled.  My radiation would now finish on Monday, the 16th.  I turned around and went home.

On Wednesday, my eye was beginning to bother me.  At first I thought it was allergies but it seemed to feel worse as the day progressed.  By the afternoon, my colleague poked his head over my cubicle, took one look at me and said "You need to go home RIGHT NOW" Then others congregated around my cubicle saying the same thing.

The next few minutes was a whirlwind of panic -  Lisa started to wipe everything off with Lysol wipes and I heard someone say "She touched the coffee machine!!" Before I knew it, was tossed out of the office.

Pink Eye

I still have a foot print on my ass from being kicked out the door. I thought I heard a match strike as they set fire to my cubicle.

I never had an eye infection before so I googled pink eye, looking for home remedies to soothe it.  Now I learned after being diagnosed with cancer, that the internet can scare the bejeezus out of you.  Often the internet will give you worst case scenarios.  In this circumstance, my eye looked 10 times worse than any image found on the internet.  By Thursday afternoon I was sitting in the Eye Institute with what appeared to be a new strain of virus.  Automatic 2 week ban from the office.  When they took swabs from my eye, it reminded Carolyn of the scene in the 40 Year Old Virgin where they wax Steve Carrell's chest.  I screamed everything short of "Jesus Monkey F*ck!"  I knew things were not going to end well when the resident used the same Qtip to check both eyes and on Friday morning, the infection spread to both eyes.

My cousin nicknamed me the Cyclops...he was being flattering.

Radiation went ahead as planned.  The technicians wore gloves and basically ordered a Hazmat team to clean the room upon my departure.  I didn't get to ring the bell on Monday after my last radiation...what can I expect?  I am contagious.  No big deal, it never seemed very loud when others rang it.  What I should have done was select an alert from my iPhone as I walked down the hall....Great ideas sometimes come after the fact.

Ironically, the song playing during my last radiation was Frank Sinatra's (I did it) My Way  .....Fitting

Afterwards, I headed upstairs to emergency because my throat was killing me and after a 4 hour wait was told I have strep throat.  All the staff looked at me with sympathy.  I was pretty pathetic looking.

This is what happens when you go to the hospital everyday - You pick up germs.  Then your body/immune systems gets knocked down and you get even more sick.

Jeff told me this is my body's way of telling me to slow down.

Oh yeah?  Well I wish my body would shut up and give me a break

In addition, my Herceptin treatment has been postponed by a week.  I'm not surprised. It wouldn't be fair to walk into the chemo unit and expose anything contagious to people with no immune system.

A little penicillin and a little rest, and I am back to normal but I am still not allowed back in the office until my Dr note expires.  I have nicknamed myself the Office Leper.

Working from home reminds me of chemo days - I wasn't crazy about it at that time either, and its especially hard when the weather is so beautiful...but whaddya gonna do?

Will make up for lost time in July

Monday, May 26, 2014

Avoiding the "What Ifs"

Now that I am half way through radiation, things are running a bit more efficiently.  I find I do not wait as long for a machine and have realized, I should do a little shopping in the neighbourhood of the hospital, etc to kill time during rush hour, before heading home.  I have my routine down to an almost science.  Hop on the bed, crack a few jokes and get the show on the road.

Sometimes the technicians play music.  I have not brought any music to share as they probably would not enjoy my selections and the actual radiation takes less time than most songs.  One day, Mr Tambourine Man by Bob Dylan was playing.  For someone who enjoys good 80s hair metal, having to lie still and listen to Dylan’s whiny voice was the equivalent to Chinese water torture.  Other tunes include hits from the Bee Gees or Cold Play and have been better selections for me.

Speaking of lying still, I noticed mesh masks on a wall behind me.  They are for people receiving radiation to the head area.  Masks are fitted to the patient in order to keep their head perfectly still, as they do not want any other vital organs hit.  Now that is scary stuff for a whole lot of reasons, including the whole claustrophobic aspect.  You never have to look far for someone who has it worse than you.

So far the skin has become red and a little bit of pain but nothing worse than the time I spent an afternoon in Miami, on the beach wearing an SPF 8 oil…..That was an incredibly dumb idea.

I have even met a few new cancer vixens!  When you visit the same waiting room every day, you are bound to start a conversation.  I notice that I tend to gravitate towards women who appear to be my age and I am fascinated by everyone’s story.

Over Victoria Day weekend, I had a few family members and friends over for the first bonfire of the season.  What a fantastic night!  It was chilly but at least the stayed bugs away.  All the kids had an excellent time just running around in the back yard with a soccer ball.  Brigitte brought over the most amazing popcorn (which does not help losing the 25 lbs I gained during chemo) and my God Child, Delaney has decided she wants to move to my farm.

My cousin's son commented that he forgot what I look like with hair....You know what?  So do I

After everyone left and as I was bringing cups and snacks inside, I checked my emails on my phone.  I received a message from one of my fellow cancer vixens.  I had met one her friends briefly on the day of my last chemo.  This woman  finished her chemo and radiation to treat breast cancer in March.  She recently has found out that her cancer has returned to her liver and its inoperable.  If anything would wipe a feel good smile off my face form the evening’s festivities; it would be that.  I think you could hear a needle scratch right off the record....How can that happen??  She would’ve had all the same bone, chest, liver tests prior to chemo and they were clean.  She put her body through hell and back with chemo, plus radiation….only to have cancer return in a couple of months?

I felt horrible and scared for her.  I believe there is an automatic bond that is shared with women who have been diagnosed and treated with breast cancer.  Even though I only met her once, can only imagine what a blow it must be to her and her family.  I worried about my friend too, as I can imagine the thoughts running through her head.  Then I got completely selfish and started thinking about myself.  What if this happens to me?  I have mentally prepared myself of the chance that my cancer may return.  And decided I will just go through the same motions I went through in the past few months and pull through.  I may not be as chipper as I have been during this tour but you learn to manage.  I also would never in a million years expect it to return that quickly.

The thought weighed heavy on my mind for a few days.  I was a bit emotional pulling into the Cancer Centre’s parking lot, thinking what’s the point of doing this?

Then I realized I was being the biggest hypocrite ever.  First of all; how dare I make this about me.  I have become so selfish and it isn't about me - It's about someone else.  Any energy I have should be directed in sending positive vibes and prayers her way.  Secondly, I have been adamant about not having people feel sorry for me so why am I feeling sorry for myself…over something that has not even happened???

Apparently these fears are common – the whole “what if this doesn’t work?  What if it comes back?”   Kim, being the counsellor she is, gave me a fantastic analogy:  My 4 year old Godchild and her sister are afraid that an alligator lives under their bed and will come to eat them in the middle of the night.  It likely will never happen but a perfectly justifiable fear for a young child.  It is also justifiable that a 39 year old woman being treated for breast cancer, has a fear of it returning.  It doesn’t mean it will happen.


I don’t want to live my life like that...wondering if my cancer returns.  Cancer has taught me, among other things; life is too short to waste on the “what if” or the “shoulda.”  There are always going to be circumstances beyond your control but its up to yourself to direct your energy towards what is important to you and keep it positive. 


My nephew and I...he forgot what I look like with long hair but he will soon be reminded


Monday, May 12, 2014

Radiation - Week One

Last week was the first week of radiation.   It certainly is a big change from chemo.

In addition to far less severe side effects, I can now drive myself to and from therapy.   Although wait times can be a nightmare,  the actual radiation lasts only a few minutes. And there are no needles involved.

How does it work?  Every Thursday,  I get my appointments for the following week. Upon arrival,  I scan myself in, change into a hospital gown and wait to be called.....

And some days, I wait a long time....

The hospital tries to schedule as many people as possible.   That's a great idea if everyone arrives on time and actually lie still for whatever amount of time required to complete their treatment.  That is often not the case.  Technicians can spend a good 10 - 15 minutes to line someone up for their treatment, only to have the person move or suddenly have an urgent need to run to the washroom.   I also heard most people ask for morning appointments and often that is when the back logs occur.  I asked to be scheduled towards the end of the day, thinking most scheduling issues would be resolved and it also wouldn't disrupt my work day.  After the second day of waiting approximately an hour for a ten minute treatment, I began to wonder if I made a mistake.

Then on the days I do not wait for a machine I still ponder if I made the right choice of requesting end of day appointments, as I sit in rush hour traffic.

I can't win

The machine is in a large, cold room and the technicians' hands are equally as cold.  They adjust me on the bed, lining up my tattoos to the machine.   The same machine is used each time to ensure I receive as close as possible the exact same treatment every time.   I'm machine lucky #7.

Once I am lined up, that's it.  No moving.   Murphy's Law dictates that is about the same time I get an itch. There has been at least one instance where I have asked one of the Technicians to scratch my cheek or rub my eye.

I say the same thing every time the Technicians leave the leave the room.  "If you need me, I'll be here."  I think its worth a smile.  Once the actual radiation process starts, the arm of the machine rotates from side to side, stopping about 3-4 times over the area and emits radiation.  Its hard to explain - Although I don't feel anything; I do at the same time, feel like a wave passing over the area.  Its very hard to explain. The whole process takes maybe 5-7 minutes.

Usually, while lying there, I use the time to practice my meditation. Imagining your breathing patterns as a circular motion or focusing on how your breath suspends in between inhales/exhales should take your mind of any itches or urges to pee.  However, Technicians can see and hear me from the other room and I am very tempted to serenade the team.  The only song that has popped into my head so far is Donna Summer's Hot Stuff.  Don't ask me why.

Maybe I should post a request on Facebook asking for jokes.